Get Involved — Living in the Light

Reach out.
Tell us a Story.
Ask us a Question.

Joining the Living in the Light family is sometimes as easy as just reaching out. We love meeting new families, patient advocates, and partners in industry who share our ethics for the authentic portrayal of affected individuals and improved access to new medicines.

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Let us know if you are affiliated with a rare disease community, part of a patient advocacy organization, or working with a particular group or company. We have friends in many places and may be closer connected than you think! Also, we love stories--if you have one that you feel open to share, we're here to listen.

Reach out. Tell us a Story.Ask us a Question.

Reach out.
Tell us a Story.
Ask us a Question.