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  • The Tenacity of Hope
    • 3/7/24

    The Tenacity of Hope

    The Tenacity of Hope is a documentary film made in collaboration between Living in the Light and CureCMD, showcasing members of the congenital muscular dystrophy community and their diverse journeys and perspectives. The film was originally created for CureCMD’s Patient-Focused Drug Development (PFDD) meeting with the FDA in 2022.

  • Luca the Lion | A life with XLMTM
    • 3/7/24

    Luca the Lion | A life with XLMTM

    An honest look at a day-in-the-life of a young boy and his family, living with X linked myotubular myopathy (MTM). Luca's playful sense of humor and personality shine through even on the toughest of days.

    To learn more about MTM, visit:
    https://rarediseases.info.nih.gov/diseases/11925/x-linked-myotubular-myopathy
    For family outreach and support in the US, visit: http://www.mtm-cnm.org/about-mtmcnm.html
    To learn more about Living in the Light, visit: https://www.frompatienttoperson.com/

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